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True Experts in the Field of Testicular Cancer
In the world of cancer, Testicular Cancer is relatively rare. To give you some perspective, approximately 8,250 men in
the USA are going to be diagnosed with TC this year. While that may seem like a lot, it only accounts for about 1% of all
the cancers affecting men. More importantly, if you compare that number to the number of board certified urologists in the
country (around 8,000), you'll see that even the doctors who are supposed to know the most about TC do not actually get to
see it very often. The same thing can be said for Oncologists, Pathologists, Radiologists, and especially General Practitioners.
In fact, Urology News Online estimated that a GP in the UK will only see one case of testicular cancer for every 21.4 years
that they are in practice!
So why are we telling you this? While we don't want you to lose confidence in your doctors, we do want you to realize
that due to the relative rarity of this cancer, many doctors simply do not have the experience and expertise needed to deal
with some of the complexities involved in its treatment. Only a small percentage of urologists perform a nerve sparing RPLND
operation often enough to be considered experienced, let alone expert. Similarly, many oncologists are on uncertain ground
administering the normal BEP protocol, let alone treating TC recurrences and advanced metastatic disease. The same can be
said for the pathologists that look at the original slides after the orchiectomy. One study found that 32% of the pathology
reports evaluated had errors, and 36% of those errors resulted in a change in the treatment or prognosis. In fact, in Scotland
they "found that survival rates for testicular cancer at one unit were 10 per cent better than at four others".
Even worse, an EORTC Study found that among poor prognosis patients, those treated at a center that rarely sees this type
of cancer had a risk of death almost twice as high as those patient treated at a center that sees a lot of this cancer. Their
treatments did not work as well and they suffered from more treatment related problems. There clearly is an advantage in making
sure that your doctor knows how to treat this cancer!
Because of these numbers, we are strong believers in getting the right diagnosis from the right source. This may involve
getting a second opinion, and it may also mean consulting with an expert in another city (or country!) in order to verify
the proper treatment. It may involve having your slides sent to an expert pathologist to verify the histology of the tumor,
or it may mean travelling to have the surgery you need done by someone who does it frequently and expertly.
We have compiled the following list of experts in order to help you get the best treatment - you may already be asking
"Are these doctors the ONLY ones who know how to treat testicular cancer?!" - certainly not, but these doctors have
chosen testicular cancer as their specialty / area of research, and they have been specially trained to treat it. They know
what to do, and they are more than willing to help you or your doctor understand the correct treatment options.
If your cancer has recurred after initial treatment, or if the initial treatment did not work, then we strongly encourage
you to call one of the doctors on this list!
We hope this list helps you in your TC experience, if you have any feedback, please contact us.
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United States Rest of the World
Indianapolis Portland Canada France
New York City Tennessee United Kingdom Ireland
Boston Cleveland Norway The Netherlands
Chicago San Francisco Germany Austria
Seattle Durham, NC Denmark Italy
Los Angeles Las Vegas Israel Australia
Philadelphia Denver
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United States:
Indianapolis, Indiana
IU Cancer Center: (317) 278-4822, (888) 600-4822 Toll Free
Indiana University, Department of Oncology - phone 317-274-0920 for physician advice or appointments.
They usually respond within 24 hours.
Dr Lawrence Einhorn
Dept of Medicine
Phone: (317) 274-0920
Fax: (317) 274-3646
Dr Patrick Loehrer
Dept of Medicine
Phone: (317) 274-0920
Fax: (317) 274-3646
Dr Steven Williams
IU Cancer Center
Phone: (317) 278-0070
Indiana University, Department of Urology
Dr Richard Foster
Dept of Urology
Office: RT 420
Phone: (317) 274-3458
Fax: (317) 274-0174
Dr Richard Bihrle
Dept of Urology
Office: WD S320
Phone: (317) 630-7744
Fax: (317) 274-0174
Dr Stephen Beck
Dept of Urology
Phone: (317) 278-9272
Fax: (317) 274-3763
Indiana University, Department of Surgery
Dr Kenneth Kesler
Dept of Surgery, Director, Thoracic Oncology Program
Phone: (317) 274-2394
Fax: (317) 274-2940
Indiana University, Department of Pathology
Dr Thomas Ulbright
Dept of Pathology, Director of Anatomic Pathology
Phone: (317) 4 91-6000
For pathology consults, send slides to Dr Ulbright at this address:
Clarian Pathology Laboratory
350 West 11th Street, #4010
Indianapolis, IN 46202
The slides should be accompanied by the original pathology report. IU will charge a consultation fee for this service,
so include a copy of your insurance information if you want them to bill insurance directly.
Portland, Oregon
Dr. Craig Nichols
Chairman of Hematology / Oncology
Oregon Health Sciences University
3181 Sam Jackson Park
Rd. L580, Portland, OR 97201-3098
Phone: (503) 494-8534
Fax: (503) 494-4285
Dr. Sia Daneshmand
Assistant Professor of Surgery
Section of Urologic Oncology
Division of Urology & Renal Transplantation
Oregon Health Sciences University
3181 Sam Jackson Park
Rd. L588, Portland, OR 97201-3098
Phone: (503) 494-4779
New York City, New York
Memorial Sloan Kettering Cancer Center
Medical Oncology
Dr George Bosl
Chairman, Department of Medicine
Patrick M. Byrne Chair in Clinical Oncology
Phone: (212) 639-8473
Dr Robert Motzer
Associate Chairman for Clinical Trials, Department of Medicine
Phone: (646) 422-4312
Dr Dean Bajorin
Phone: (646) 422-4333
Urology
Dr Joel Sheinfeld
Vice Chairman, Department of Urology
Phone: (646) 422-4311 Dr Harry Herr
Phone: (646) 422-4411
Dr Pramod Sogani
Phone: (646) 422-4395
Pediatric Surgery
Dr Michael Laquaglia
Chief, Pediatric Surgical Service
Phone: (212) 639-7002
Tennessee
Dr Bruce Roth - Oncology
Vanderbilt-Ingram Cancer Center (TC Specific Info)
Nashville, TN 37232
Phone: (615) 343-4070
Fax: (615) 343-7602
Dr Michael Cookson
Vanderbilt University Medical Center
Department of Urologic Oncology (TC Specific Info)
A-1302 Medical Center North
Nashville, TN 37232-2765
Appointments: 615 322-2880
Phone: (615) 322-2101
Fax: (615) 322-8990
Dr Bedford Waters
University of Tennessee Medical Center
Associate Professor, Department of Surgery
Urologic Oncology
1928 Alcoa Highway
Knoxville, TN 37920
Phone: (865) 544-9254
Fax: (865) 544-9716
Boston, Massachusetts
Dr. Phil Kantoff - Oncology
Dana-Farber Cancer Institute
Harvard Medical School
44 Binney Street
Dana 1230
Boston, MA 02115
Phone: (617) 632-1914
Appointments: (617) 632-4974
Fax: (617) 632-2165
Dr Marc Garnick - Oncology
Beth Israel Deaconess Medical Center
330 Brookline Avenue
Cambridge, MA 02139
Phone: (617) 667-5288
Fax: (617) 667-9919
Dr Jerome Richie
Chief, Division of Urology
Brigham and Women's Hospital / Dana-Farber Cancer Institute
Harvard Medical School
45 Francis St.
Boston, MA 02115
Phone: (617) 732-6325
Fax: (617) 566-3475
Physician Referral: 1-800-638-6294
Dr Gilbert Brodsky - Pathology
Department of Pathology and Laboratory Medicine
Harvard Vanguard Medical Associates
120 Brookline Ave
Boston, MA 02215
Phone: (617) 421-2350
Denver, Colorado
Dr L. Michael Glodé, M.D.
Co-Director, Adult Clinical Oncology Program
University of Colorado Health Sciences Center
Denver, Colorado
Phone: (303) 315-4757
Fax: (303) 266-3623
Chicago, Illinois
Dr. Chris Coogan - Urology
Rush Presbyterian St. Lukes Medical Center
1725 West Harrison, Suite 758
Chicago, IL 60612
Phone: (312) 942-8484
Fax: (312) 942-8494
Cleveland, Ohio
Dr Derek Raghavan, M.D.
Director & Chair, Cleveland Clinic Taussig Cancer Center
9500 Euclid Avenue
Cleveland, OH 44195
Phone: (216) 445-6888
Dr Eric Klein, M.D.
Head, Section of Urological Oncology, Urological Institute
Cleveland Clinic
Desk A100, 9500 Euclid Avenue
Cleveland, OH 44195
Phone: (216) 444-5591
Fax: (216) 445-9628
Seattle, Washington
Dr Paul Lange, M.D.
Chairman, Department of Urology
University of Washington School of Medicine
Phone: (206) 543-3918
Urology Clinic Number: (206) 598-4294
Dr Daniel Lin, M.D.
Assistant Professor, Department of Urology
University of Washington School of Medicine
Phone: (206) 667-1342
Fax: (206) 667-2917
Urology Clinic Number: (206) 598-4294
San Francisco, California
Dr Peter Carroll
Professor and Chair, Department of Urology
University of California School of Medicine, San Francisco
Appointments: (415) 353-7171
Phone: (415) 353-7098
Fax: (415) 353-9932
Los Angeles, California
Dr Donald Skinner, M.D.
Chairman, Department of Urology
Norris Comprehensive Cancer Center and Hospital
University of Southern California
Phone: (323) 764-3707
Fax: (323) 22-8064
Phone: (800) 872-2273
Dr Daniel J. Lieber
The Angeles Clinic and Research Institute
2001 Santa Monica Blvd
Suite 560W
Santa Monica, CA 90404
Phone: (310) 582-7900
Durham, North Carolina
Dr Judd Moul
Professor and Chief, Division of Urology
Duke University School of Mediciner
DUMC 3707, Durham, NC 27710
Appointments: (919) 684-5057
Fax: (919) 684-8794
Philadelphia, Pennsylvania
Dr David J Vaughn, M.D.
Medical Director, Abramson Family Cancer Research Institute
Associate Professor of Medicine, Hematology-Oncology
Abramson Cancer Center at the University of Pennsylvania
16 Penn Tower
3400 Spruce St.
Philadelphia, PA 19104
Phone: (215) 349-8140
Fax: (215) 662-7804
Las Vegas, Nevada
Dr Nicholas Vogelzang, M.D.
Director, Nevada Cancer Institute
10000 W. Charleston Blvd., Suite 260
Las Vegas, NV 89135
New Patient Phone Line: (702) 822-5111
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And Around the World:
Canada
Dr Michael A.S. Jewett
Professor
Division of Urology, University of Toronto
Head, Division of Urology, University Health Network
610 University Avenue, Room 3-130
Toronto, Ontario, M5G 2M9 Canada
Phone: (416) 946-2909
Fax: (416) 598-9997
Dr Mary Gospodarowicz
Professor, Department of Radiation Oncology, Department Chair and Department Head
University of Toronto
Princess Margaret Hospital
610 University Avenue
Toronto, Ontario, M5G 2M9 Canada
Phone: (416) 946-4421
Fax: (416) 946-2038
Dr Padraig Warde
Associate Professor, Department of Radiation Oncology
Princess Margaret Hospital
610 University Avenue
Toronto, Ontario, M5G 2M9 Canada
Phone: (416) 946-2122
Fax: (416) 946-4586
Dr Christian Kollmannsberger
Clinical Associate Professor of Medicine
Division of Medical Oncology
British Columbia Cancer Agency
Vancouver Cancer Center
Phone: (604) 877-6000 x2674
Fax: (604) 877-0585
France
Professor Jean-Pierre Droz, M.D., Ph.D.
Department of Medical Oncology
Leon Berard Cancer Center
28 rue Laennec
69008 Lyon, France
Phone: +33 478 782 724
Fax: +33 478 782 716
Pr Stéphane Culine, M.D., Ph.D.
Department of Medicine (Oncology)
CRLC Val d'Aurelle
Parc Euromédecine
34298 - Montpellier Cedex 5
France
Phone: +33 4 67 61 31 50
Fax +33 4 67 61 30 22
United Kingdom
Professor Alan Horwich MBBS PhD FRCP FRCR
Chairman, Radiotherapy Section
Department of Radiotherapy and Oncology
Royal Marsden NHS Trust
Institute of Cancer Research, Sutton, Surrey, UK.
Phone: 0181-643-3274 (?) (or 0181 643 8901 extension 3274)
Fax: 0181-643-8809
Dr G.M. Mead MD FRCP Oncology
The Wessex Medical Oncology Unit
Royal South Hants Hospital
Brintons Terrace, Southhampton, S014 OYG, UK
Dr Tim Oliver MD FRCP Oncology
Medical College, The Royal London Hospital, UK.
Phone: 0171 377 7000 (Country Code 44)
Dr Bill Jones MD
Consultant Oncologist
Oncology Department, Cookridge Hospital
Hospital Lane, Leeds, LS16 6QB, UK
Phone: 0113 292 4227 (Country Code 44)
Dr MH Cullen
Birmingham Oncology Centre, University Hospital, UK.
Dr Tim Christmas
Department of Urology
Charing Cross Hospital, London, UK
Dr David Dearnaley
Radiotherapy Section
Department of Radiotherapy and Oncology
Royal Marsden NHS Trust
Institute of Cancer Research, Sutton, Surrey, UK.
Phone: 0181-643-3271 (?) (or 0181 643 8901 extension 3271)
Phone: 0181-643-3458 (?) (or 0181 643 8901 extension 3458)
Ireland
Dr John Thornhill
Department of Urology
Meath Hospital
Dublin, Ireland
Dr John Crown
Oncologist
St Vincent's Hospital
Dublin, Ireland
Norway
Dr Sophie Fosså
Department of Medical Oncology and Radiotherapy
Head of Division, Professor
Norwegian Radium Hospital, Montebello, Oslo, Norway
Phone: +47 22 93 57 91
Dr Nina Aass
Department of Medical Oncology and Radiotherapy
Senior Oncologist, Professor
Norwegian Radium Hospital, Montebello, Oslo, Norway
Switchboard: +47-2293 4000
The Netherlands
Dr Ronald de Wit
Department of Medical Oncology
Erasmus University Medical Center
Postbus 5201 (Groene Hilledijk 301)
NL-3008 AE Rotterdam, The Netherlands
Phone: +31 010 4391760
Fax: +31 010 4391003
Dr Pieter de Mulder
Department of Internal Medicine, Oncology
University Hospital Nijmegen, The Netherlands.
Phone: +31 024-3611111
Dr Gerit Stoter
Oncology
Rotterdam Cancer Institute (Daniel den Hoed Kliniek)
The Netherlands
Phone: +31 010-4391331
Fax: +31 010-4391003
Dr HJ Hoekstra
Division of Surgical Oncology
Groningen University Hospital
The Netherlands
Phone: +31 050-3612317
Fax: +31 050-3614873
Dr DT Sleijfer
Department of Medical Oncology
Groningen University Hospital
The Netherlands
Phone: +31 050-3612822
Germany
Dr. Joerg Beyer
Medizinischer Direktor
Oberschwabenklinik
Elisabethenstrasse 15
88212 Ravensburg
Phone: +49 0751-87 2080
Fax: +49 0751-87 2095
http://www.hodenkrebs.de
Dr Peter Albers
Arbeitsgemeinschaft Urologische Onkologie
Abteilung für Urologie
Universitätsklinik Bonn
Sigmund-Freud-Str.25
53105 Bonn
Phone: +49 228 287 4184 / -5231
Fax: +49 228 287 4285
Prof. Dr. Lothar Weißbach
Urologische Abteilung (Urology)
Krankenhaus Am Urban
Dieffenbachstr. 1
10967 Berlin
Phone: +49 030/697 26301
Fax: +49 030/697 26306
PD Dr. Carsten Bokemeyer
Department for Haematologie and Onkologie
Eberhard Karls Universität of Tübingen
Medizinische Klinik II
Ottfried Müller Str. 10
72076 Tübingen
Phone: +49 07071/298 4477
Fax: +49 07071/298 3675
Prof. Dr. Wolfgang Siegert
Abteilung Hämatologie und Onkologie
Virchow-Klinikum der Humboldt-Universität zu Berlin
Augustenburger Platz 1
13353 Berlin
Phone: +49 030/450 53673
Fax: +49 030/450 53925
Prof. Dr Hans Schmoll
Martin Luther Universität Halle Wittenberg
Kinik für Innere Medizin
Abteilung Hämatologie und Onkologie
Ernst Große Str.40
06120 Halle/Saale
Phone: +49 0345/557 2924
Fax: +49 0345/557 4959
PD Dr HG Derigs
Arbeitsgemeinschaft Internistische Onkologie
III.Medizinische Klinik
Klinikum der Johannes Gutenberg Universität
Langenbeckstr.1
55128 Mainz
Phone: +49 06131/17 2710
Fax: +49 06131/17 6647
Austria
Prof Dr Wolfgang Höltl
Head Department of Urology
Kaiser Franz Josef Spital
Kundratstrasse 3
A-1100 Vienna
Phone: 0043-1-60191-4801
Fax: 0043-1-60191-4809
Prof.Dr. Jörg Pont
Department of Medical Oncology
Kaiser Franz Josef Spital
Kundratstrasse 3
A-1100 Vienna
Phone: 0043-1-60191-2312
Fax: 0043-1-60191-2309
Denmark
Dr Mikael Rørth M.D., Ph.D. Professor.
Department of Oncology 5074
Rigshospitalet, Copenhagen, Denmark.
Phone: +45 - 3545 4608
Fax: +45 - 3545 6966
Dr Steen Hansen
Department of Oncology, Finsen Institute
Rigshospitalet, Copenhagen, Denmark
Italy
Dr Cora Sternberg, M.D.
Chief, Department of Medical Oncology
San Camillo & Forlanini Hospitals
Pavillion Cesalpino II
Circonvallazione Gianicolense 87
00152 Rome, Italy
Phone: +39 06 58704356
Fax: +39 06 58704581
Dr Giorgio Pizzocaro, M.D.
Director, Division of Urology
Istituto Nazionale Tumori, Milan, Italy
Phone: +39 02 70125878
Israel
Dr Jack Baniel
Urology
Rabin Hospital, Belinson campus.
Phone: 972-3-9376903
Australia
Dr Guy Toner
Head, Medical Oncology Unit
Peter MacCallum Cancer Institute
St Andrews Place
East Melbourne VIC 3002 Australia
Phone: +61 3 9656 1190
Fax: +61 3 9656 1408
Dr Joseph McKendrick
Director of Medical Oncology
Department of Clinical Haematology & Medical Oncology
Box Hill Hospital
Nelson Road, Box Hill 3128
Victoria, Australia
Phone: +61 3 895 3585 (?)
Fax: +61 3 9895 3141
Prof John Levi
Clinical Professor and Director - Medical Oncology
Royal Prince Alfred Hospital
Camperdown, Sydney, NSW, Australia
E25 - Royal North Shore Hospital
The University of Sydney, NSW 2006 Australia
Phone: +61 2 9926 7448
Mobile: +61 18 243224
Fax: +61 2 9906 4150
Dr Michael Boyer
Clinical Senior Lecturer - Medical Oncology
Royal Prince Alfred Hospital
Camperdown, Sydney, NSW, Australia
Clinical Senior Lecturer
C39 - Royal Prince Alfred Hospital
The University of Sydney, NSW 2006 Australia
Phone: +61 2 9515 6123
Fax: +61 2 9519 1546
Dr Peter Nash
Urology
Urology Sydney
Level 1
St. George Medical Centre
1 South St.
Kogarah, NSW 2217 Australia
Phone: 61 2 9587 4888
Fax: 61 2 9587 4899
Dr Bill Lynch
Urology
Urology Sydney
Level 1
St. George Medical Centre
1 South St.
Kogarah, NSW 2217 Australia
Phone: 61 2 9588 2981
Fax: 61 2 9588 2614
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